Latest news on inclusion body myositis
In early 2015, Mike Matthews, a teacher, social worker, and counselor for the State of Kentucky, experienced a constellation of apparently unrelated health problems that doctors could not diagnose.
A ray of hope is on the horizon for patients facing the debilitating effects of the muscle-wasting disease inclusion body myositis (IBM). Clinical trials are tentatively scheduled for later this year, with a projected enrollment of 150 patients to be distributed between 10 sites in the United States and one in the United Kingdom.It's difficult to do research studies in rare diseases, Dimachkie said, and getting patients involved is a challenge. A ray of hope is on the horizon for patients facing the debilitating effects of the muscle-wasting disease inclusion body myositis (IBM). Beta-interferons counteract some of the activities of the immune system, which some experts believe is misguided in IBM.News-Medical speaks to Dr. Robert M. Sargis about his research into whether medication is exposing us to hormone-disrupting chemicals.In this interview, Dr. Andrea Dunaif talks to News-Medical about their genetic analysis study which suggests there are different subtypes of PCOS.News-Medical speaks to Dr. James Martin and Dr. Zemer Gitai from Princeton University about their research which led to the discovery of a new antibiotic.
IBM most commonly affects people of 50 years of … Dysphagia, difficulty swallowing, when caused by inclusion body myositis (IBM) is called myogenic dysphagia. More than half of IBM patients will have difficulty swallowing, which may result in poor nutrition. 11 Oct 2015
15 Apr 2009
Dermatomyositis is a rare and debilitating inflammatory muscle and skin disease associated with significant morbidity, decreased quality of life and an increased risk of premature death.The U.S. Food and Drug Administration today announced it has awarded 18 new research grants totaling more than $19 million to boost the development of products for patients with rare diseases, which affect the lives of nearly 30 million Americans.In 2009, Mike Powell was where he'd always wanted to be. 18 Oct 2007
"In many ways it's like the Alzheimer's of muscles," Barohn said. University of Kansas Medical Center researchers conducting a joint study with the Medical Research Council (MRC) Centre for Neuromuscular Diseases at University College London are poised to take the next step in testing the drug, arimoclomol.There is currently no treatment for IBM, but research conducted by the KU/UCL partnership, published in the March 23 issue of The most common muscle disease in people over 50, IBM is incurable and causes progressive muscle degeneration leading to severe disability, paralysis and dependency.
There are multiple drugs in clinical trials for IBM. Retaliation is also prohibited by university policy.
13 May 2009
"The combined force of teams of researchers from two large universities - and their teams of lawyers - gave us a kind of triangulation that wouldn't have happened with a single institution," Hanna said.Coordination between two institutions in two countries is highly unusual, and it made the investigation more complicated, Hanna said.
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